Skip to main content

My Endometriosis Update 27/09/13

This post is just to bring you all up to speed with what's going on with me at the moment, treatment wise...

 I finally got my gynaecology appointment after six months of waiting. I am under a new consultant at the hospital which I am happy with. At my appointment I saw a Junior Doctor called Claire. I was a bit wary as it wasn't the actual consultant. She asked me what had been going on and let me explain everything to her. She actually listened to everything I said and was so understanding and patient when I became a bit emotional. She stated that my overall problem was obviously pain and if they could help to sort that out it could help all areas of my life (e.g working, depression, social life). Which I agree with totally. She talked through some treatment options. The coil, noristhertone tablets, different pills etc etc. Until I told her I had actually tried all of those options already. To say she was flummoxed as what to do next was an understatement. But instead of fobbing me off there and then she admitted she was unsure and wanted to talk to the consultant Mr Chawathe who has more experience. If only other doctors would do that instead of making up some other rubbish to get us out. The conclusion he came to was that he does not know if it's endometriosis or adhesion's that are causing my pain. If they do an operation straight away and it's just adhesion's then that will only cause more scar tissue, more pain, same problem. 


To work out which it is, I have to go on Hormone Injections again (GnRH),called Prostap. Similar ones other endosisters may have had are Zoladex or Lupron. These will shut down my ovaries and put me into a medical menopause. I went through this procedure two years ago. Unfortunately, it didn't go too well for me last time, made me feel quite unwell and the side effects were awful. I had other complications last time from the coil aswell so I decided to give it a go again. If I don't try, I won't know. And i'll try anything to get me out of this pain i'm suffering on a daily basis. I will have the injections for 3 months to start, then it will be reviewed. If it has stopped my endo pain it may be extended for another 3 months. Or surgery may be the next step... again! 

Does anyone else feel like they are going round and round in circles?! A vicious circle to say the least! Wish me luck. I think i'm going to need it!!




#MyEndoDiary

Comments

Popular posts from this blog

Endometriosis: Post op

Ok, so I thought I should update you all after my operation on Tuesday.  I have a lot of mixed emotions after the laparoscopy though and I promise to fill you all in soon. I'm sure many of you have felt the same way I'm feeling now so I will post in the near future about all the details. Sharing information is the best way to know we're not alone in this. But for the moment, I'm just getting my head around things and concentrating on recovery. UPDATED: Endometriosis was found in my ovaries as expected and removed. It was also found on my bowel, but it was left untreated. #MyEndoDiary ♡

Endometriosis And New Beginnings

I know I won't be alone in these thoughts on this subject.. Endometriosis and a new relationship..  What do you tell them? How much do you tell them? When do you bring it up?  A million questions have been overloading my mind lately as I start a new chapter in my life. The last few weeks have been a bit of a whirlwind for me. A good one! But, fast moving, exciting and terrifying all at once. The scariest part of it all is how endometriosis will impact everything. Right now, it is behaving. But we all know how quickly that changes. I don't want my life revolving around Endo. It has taken over way too much of it already! Now, I have started enjoying my life again, I'm terrified it will be snatched away to pain once again. I have shared The Spoon Theory with my new boyfriend, who was extremely understanding about it. Which actually made me feel so much at ease. I have explained a few of the symptoms. He knows I get 'bad days' and that i'll need rest ...

Endometriosis: 3rd Time Lucky?

August 25th. This will be the date of my next operation. My third. I have waited 12 months to get this date. Then, out of the blue, I receive a letter from the hospital. With only 12 days notice. In a way, that's good. Less time to stress. But for me, I'll stress no matter what. I'll just cram a year of waiting into 12 days of worry. I'm now down to 7 days. This time next week... Some people may think that knowing what will happen and how the day pans out etc, will be a benefit. A comfort perhaps. For me, it's the complete opposite. I know how emotional I will get. I know the feelings of panic, anxiousness and nervousness will build up. I know at certain points they'll peak and I'll break down. Just before I'm due to go down to theatre I'm guaranteed to start crying. The fear takes over and there's nothing I can do at that point but just trust the doctors and nurses. But that's normal I guess. Third time around, it will not be any ...