This post is just to bring you all up to speed with what's going on with me at the moment, treatment wise...
I finally got my gynaecology appointment after six months of waiting. I am under a new consultant at the hospital which I am happy with. At my appointment I saw a Junior Doctor called Claire. I was a bit wary as it wasn't the actual consultant. She asked me what had been going on and let me explain everything to her. She actually listened to everything I said and was so understanding and patient when I became a bit emotional. She stated that my overall problem was obviously pain and if they could help to sort that out it could help all areas of my life (e.g working, depression, social life). Which I agree with totally. She talked through some treatment options. The coil, noristhertone tablets, different pills etc etc. Until I told her I had actually tried all of those options already. To say she was flummoxed as what to do next was an understatement. But instead of fobbing me off there and then she admitted she was unsure and wanted to talk to the consultant Mr Chawathe who has more experience. If only other doctors would do that instead of making up some other rubbish to get us out. The conclusion he came to was that he does not know if it's endometriosis or adhesion's that are causing my pain. If they do an operation straight away and it's just adhesion's then that will only cause more scar tissue, more pain, same problem.
To work out which it is, I have to go on Hormone Injections again (GnRH),called Prostap. Similar ones other endosisters may have had are Zoladex or Lupron. These will shut down my ovaries and put me into a medical menopause. I went through this procedure two years ago. Unfortunately, it didn't go too well for me last time, made me feel quite unwell and the side effects were awful. I had other complications last time from the coil aswell so I decided to give it a go again. If I don't try, I won't know. And i'll try anything to get me out of this pain i'm suffering on a daily basis. I will have the injections for 3 months to start, then it will be reviewed. If it has stopped my endo pain it may be extended for another 3 months. Or surgery may be the next step... again!
Does anyone else feel like they are going round and round in circles?! A vicious circle to say the least! Wish me luck. I think i'm going to need it!!
I finally got my gynaecology appointment after six months of waiting. I am under a new consultant at the hospital which I am happy with. At my appointment I saw a Junior Doctor called Claire. I was a bit wary as it wasn't the actual consultant. She asked me what had been going on and let me explain everything to her. She actually listened to everything I said and was so understanding and patient when I became a bit emotional. She stated that my overall problem was obviously pain and if they could help to sort that out it could help all areas of my life (e.g working, depression, social life). Which I agree with totally. She talked through some treatment options. The coil, noristhertone tablets, different pills etc etc. Until I told her I had actually tried all of those options already. To say she was flummoxed as what to do next was an understatement. But instead of fobbing me off there and then she admitted she was unsure and wanted to talk to the consultant Mr Chawathe who has more experience. If only other doctors would do that instead of making up some other rubbish to get us out. The conclusion he came to was that he does not know if it's endometriosis or adhesion's that are causing my pain. If they do an operation straight away and it's just adhesion's then that will only cause more scar tissue, more pain, same problem.
To work out which it is, I have to go on Hormone Injections again (GnRH),called Prostap. Similar ones other endosisters may have had are Zoladex or Lupron. These will shut down my ovaries and put me into a medical menopause. I went through this procedure two years ago. Unfortunately, it didn't go too well for me last time, made me feel quite unwell and the side effects were awful. I had other complications last time from the coil aswell so I decided to give it a go again. If I don't try, I won't know. And i'll try anything to get me out of this pain i'm suffering on a daily basis. I will have the injections for 3 months to start, then it will be reviewed. If it has stopped my endo pain it may be extended for another 3 months. Or surgery may be the next step... again!
Does anyone else feel like they are going round and round in circles?! A vicious circle to say the least! Wish me luck. I think i'm going to need it!!
#MyEndoDiary
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