Monday, 19 August 2013

My Endo Diaries reaches 15,000 views!

Wow. I cannot believe my blog on Endometriosis has reached 15,000 views! I'm overwhelmed. Now I know some bloggers get hundreds and thousands of views and they are a lot more known, but for me to have 15,000 views means so much! Every person who has clicked on my posts I appreciate you so so much for taking the time to do it. 

When I was first diagnosed with Endometriosis I was at a bit of a loss. I joined twitter and set up this blog in order to reach out to people & try and spread awareness. Truthfully, I didn't expect many (if any!) people to read it. For me it was just a place to rant. What I didn't expect was the love, support and reassurance I received back from people reading my blog. It still amazes me now! Whenever someone messages me to say they can relate to my blog, that it feels like they are reading about themselves & are happy to know they are not alone in this makes me feel so honoured. It's even made me quite teary at times! People being able to relate to me also stops me from feeling so alone with this awful illness. Thank you all so much!

15,000 views on I think I've achieved what I set out to do. It goes to show how united us Endosisters are. We are not alone and together we will support each other in any ways we can. I'm so glad my blog has helped some of you.

I will continue to share my endometriosis diary with you. Here's to the next 15,000 views! :)


Thursday, 15 August 2013

Endometriosis: A letter to my younger self

If you could write a letter to your younger self, (before your endometriosis diagnosis) what would you tell yourself? What advice would you give? Please take time to leave a comment below - let me know what you would say!

Here's my letter to my younger self..

Dear me..

     The periods you are having are not normal. They should not be causing you so much pain and making you spend days in bed. Don't take today for granted. In a few years you'll need all the strength you can get. There will be some tough patches ahead but I want you to remember that you are right! You know best when something isn't quite right with your body. Go with that niggling feeling! Do not let doctors or some people you know make you doubt yourself or feel insane. The pain IS NOT all in your head. IT IS REAL! Put your foot down Girl! Fight!
     There will be days you're going to struggle with pain. Getting through some days will be hard. But please believe me, you will do it! Don't stress about having to say no to invitations or going out. You will realise that you have to put yourself first & if that means spending some days in bed or resting then so be it. Your real friends will still be there after and thats something you're going to learn soon! Some will come and go. Especially those who only want you if you benefit them. When you health goes slightly down you may find some friends 'disappear'. Don't be disheartened. They weren't your real friends to start with. There'll be some surprises and trust me when I say that you'll make friends with some people you may never even meet! There is a whole group of women out there, feeling the same as you...ready to help! They are known as Endosisters. This will make no sense to you now, but I promise you that these women will become a life line.
     More than anything, keep your head up. Trust me, you are a fighter. Braver than you think and a lot stronger than you give yourself credit for. And for days when you're feeling down, in pain and fed up of not being able to do anything. Take it easy. There's always tomorrow xx

You can also read 'My Letter To Endometriosis' here. Posted via my Blogaway app

Thursday, 8 August 2013

Endometriosis: My letter to you

Dear Endometriosis,

     This is my letter to you. I want you to know how much you hurt me. You have caused me so much pain for so many years. When I was 16 my periods were so bad I'd spend days in bed and time off school. None of my friends seemed to have the same problems, yet I didn't think it was that unusual. I didn't know you were behind it. Christmas 2009 I started to feel really down and unwell. By February 2010 you started to increase the pain. Stabbing & shooting me in the stomach, making me jump when the pains came on so quickly. You made me feel completely insane when doctors wouldn't believe me. You go where you want, when you want. You agonise my back and legs. You torment my ovaries, my cervix, my pelvis, my bladder and even twisted my bowel into a loop.
     Two operations later, I've had you lasered out and cut out. At 23 I had 6 months of prostap which put me into a temporary menopause. No 23 year old should have to experience that and the side effects it put me through. Yet feelings mean nothing to you. You still find a way back. Twisting and stabbing your way in. Now age 26 you are crippling me with pain. You have me doubled over in pain, making it hard for me to walk and some days even getting out of bed is too much of a task. Endo, you have ruined my social life. A few years ago I would be out nearly every weekend. Now I cant make plans. You creep up on me out of the blue. If I go out, I'm home early. You attack my stomach so much it swells to double or triple the size. You make me look pregnant. I lost my job in March because of you. I had to take so much time off due to pain and sickness my employers wanted me out. After 9 years of working for them. 
     Recently, you've upped your game. To a whole new level. You have been making me feel so so alone. And depressed. You've made me cry every day for the last 3 weeks. This week you had me sobbing because of the pain you brought on in so many areas, all at once. Its becoming really hard to cope with. You certainly don't discriminate or play by any rules. You will hurt anyone at anytime. You're unpredictability leaves me feeling on edge. Frightened. You are fighting my pain meds to the max.. and winning at the moment. I was naive to think after my first operation that I would be free of you. Maybe even after the second I had small hope of it. Now I know differently. You're doing everything you can to hurt me, to get me down and make me give in.

     But I'm warning you I will get my strength & faith back soon. And then I will be back in control. You may have me at the moment Endo, but it will not be forever x

(Read my letter to my younger self here.)

Posted via my Blogaway app

Saturday, 3 August 2013

Endometriosis and the Spoon Theory

When I was first diagnosed with Endometriosis, I noticed on twitter people were using the hastag #spoonies. I had no idea what this was. After some research I found a website made by Christine Miserandino who created the 'Spoon Theory'. When trying to explain how Endometriosis (or other chronic illnesses) impacts you on a daily basis, this theory could not put it any better! It explains in a brilliant way how people with a chronic illness struggle with a limited amount of energy each day. How the smallest of tasks for a healthy person can leave us feeling exhausted.

I recommend any newly diagnosed Endosister's who have not seen it before to take a look! Or, use it as a good way to explain to family, friends, employers or colleagues exactly how Endometriosis can affect you.

Click here to view the article..

I hope you find the link useful!