Skip to main content

ENDOMETRIOSIS: When will it END?

Endometriosis. Endo. Adhesions. Laparoscopy. Endosisters. Words that I had never even heard of before my own diagnosis. Now they are in my everyday vocabulary. Why does the awareness of this chronic illness have to be nearly as invisible as endo itself? I hate what we have to go through on a daily basis. Isn't it enough to cope with pains that no one else can see without having to fight doctors to believe us that they are there? Surely, we shouldn't have to convince people the pain is not all in our heads! From being doubled over in pain to missing work, school, family time and  special events. To then being put through the mill with all the medications that are thrown at us. Hormones upon hormones. Painkillers and more painkillers. Poking and prodding. Surgery after surgery. Add to that endless amounts of hospital appointments and sleepless nights in between.

Is it realistic to think in this day and age that we should be expecting more? 

More awareness? Especially with those in the medical field. 
More reliable diagnosis? Not just leaving our only option of a reliable diagnosis via surgery.
More research? One's that are actually acted on! Research that will improve our daily living, not just to be published and float off into cyberspace.
More treatments? Treatments that will provide a longer lasting effect. Less side effects. Don't we have to put up with enough already?!

I sincerely hope one day soon that these expectations of mine will become a reality. Where people won't respond with "Endo what?" when we tell them what we have, but instead will have some knowledge on it.

Keep blogging, keep tweeting, keep spreading information on all social network sites. Keep researching, keep fundraising. We need to start shouting about Endometriosis from the rooftops. 

Click here to view my Endometriosis FAQ that I compiled myself, to help with awareness.. I've added my own personal experience to help!
#MyEndoDiary

Comments

Popular posts from this blog

Endometriosis: Post op

Ok, so I thought I should update you all after my operation on Tuesday.  I have a lot of mixed emotions after the laparoscopy though and I promise to fill you all in soon. I'm sure many of you have felt the same way I'm feeling now so I will post in the near future about all the details. Sharing information is the best way to know we're not alone in this. But for the moment, I'm just getting my head around things and concentrating on recovery. UPDATED: Endometriosis was found in my ovaries as expected and removed. It was also found on my bowel, but it was left untreated. #MyEndoDiary ♡

Endometriosis And New Beginnings

I know I won't be alone in these thoughts on this subject.. Endometriosis and a new relationship..  What do you tell them? How much do you tell them? When do you bring it up?  A million questions have been overloading my mind lately as I start a new chapter in my life. The last few weeks have been a bit of a whirlwind for me. A good one! But, fast moving, exciting and terrifying all at once. The scariest part of it all is how endometriosis will impact everything. Right now, it is behaving. But we all know how quickly that changes. I don't want my life revolving around Endo. It has taken over way too much of it already! Now, I have started enjoying my life again, I'm terrified it will be snatched away to pain once again. I have shared The Spoon Theory with my new boyfriend, who was extremely understanding about it. Which actually made me feel so much at ease. I have explained a few of the symptoms. He knows I get 'bad days' and that i'll need rest ...

Endometriosis: When did it all start?

Christmas 2009 is when my life changed. I had always suffered extremely heavy and painful periods. But to me that was normal. I didn't realise then that was a symptom. I was able to manage it. Whether it was wearing two pads, scouring chemists or supermarkets for period pain relief, heat pads, painkillers, holisitc bracelets, taking days off school or spending days in bed. That was my normal. But Christmas 2009 is when more symptoms started coming. Nothing I could put my finger on exactly at the time. I just I knew I didn't feel right. Especially my emotional health. I was so down. With hindsight it must of been changes of my hormone levels as hormones play such a big part in Endometriosis. Looking back, I now know that was the start of the flare. February 2010, I started having stabbing pains in my stomach. I remember the 1st ever time it happened. I was doing normal things. I was actually walking across my landing to get to my bedroom. The pains shot across through my stoma...