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My Endometriosis - Four months on..

Today its June 13th. I had my lap February 15th. Four months on, am I cured? No (wishful thinking).. Have I found all the answers I’m looking for? No not yet.. Am I better? Slightly. But nowhere near as much as I hoped. I now see I was a little naïve to think the I’d have the lap and hey presto! Im back to me again! So where am I now? Well to date, I have had four prostap injections. On the last check up at the hospital we realised that it hasn’t been working for me as it should have. For any that do not know, prostap is similar to Lupron - which is supposed to shut down your ovaries and stop your periods. I however continued to have periods while on prostap and for much much longer than normal. Last month I was on for three weeks of the month! They have decided to try me on a new medication called Norethisterone (I have no idea how to pronounce that?!) a hormonal tablet to be taken three times a day. Its been a week and I have had no spotting, no bleeding. Yay! On the other hand my emotions have been everywhere. I cried for four days straight. Over nothing and everything at the same time. I have also been one moody cow! If looks could kill then a lot of people would not have had a chance around me this week! It’s one of the worst feelings when all you do is snap at people, which always seems to be those closest to you, and you just cant control it. Insults and bitchy comments have been flying out my mouth before I’ve even had time to think. And that’s really not me at all. I’m so lucky I live with my amazing mother and brother who for this last week have totally ignored me - literally! Just left me to it. Jokes aside though its really been a tough week. This new medication has hit me hard, physically and emotionally. My stomach has swollen three times its normal size, so embarrassing! Not to mention the tiredness. I wanted to stop taking these tablets but will listen the advice of my mother to continue taking them for now and let my body adjust to them. Mothers know best after all right?? I have two injections left.. And in October I’ll have a review with the consultant who did the laparoscopy.

Who knows what will happen in the next four months. There has been plenty happening these last four. Some days I wish I could see into the future, what will happen, when will I feel completely normal and better again? Then I think what I’ve been through this last year and half. Would I have wanted to know all that? To know what each day has brought? Some days laughter and fun, however most of the time worry, pain, depression, insomnia and more pain? Not really. For now I think I’ll stick to taking one day at a time and just hope for the best.
#MyEndoDiary
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Comments

  1. Woman Warrior13 June 2011 at 18:50

    I completely understand where you're coming from. I had my surgery exactly 1 month after you and looking back I certainly was very naive as well. Although I don't think we can take all the blame because doctors also present this as the "best solution that will fix things" which sends the wrong message! I completely know the insanity that the injections and meds bring. Just know in 2 months you will be back to yourself at least emotionally and it will feel amazing! And through it all, we are right there with you. :) *big hugs*

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  2. Anonymous13 June 2011 at 18:50

    That's all we can do, take it one day at a time with Endometriosis. And, hopefully, one of these days there will be a cure.
    Look after yourself #endosister

    ReplyDelete
  3. My Endo Diary13 June 2011 at 19:05

    Thank you both. I cant wait to feel 'normal' again. But yes at the moment one day at a time is the only solution i can conjour up. Thanks :) xx

    ReplyDelete
  4. Anonymous14 June 2011 at 11:54

    Its horrible what a rough time your having and also the Side Effects your having to deal with.Im thinking of you. Im really glad you have a wonderful supportive Family and Friends to help you through everything
    I think the best way is to try and take it all one day at a time
    *hugs* x

    ReplyDelete

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