My Endo Diary

I've gone past the frustrated state I was in this morning. I've gone past the anger, the feeling that I would like to slap that Dr right across the face. Gone past feeling annoyed, wound up and livid. I'm now upset. My first ever blog  was about how the majority of doctor's dismiss endo. Today it happened once again.. << Rewind to the beginning of last week (as I stated in my previous blogs), I started a new hormonal medication called Norethisterone to help with my treatment of endo. I am also on evorel patches to counteract the side effects that come with my treatment. Since the new tablets started the patches have not been working and my emotions and mood swings have gone right out of the window. So I arranged an appointment with my GP today for some help with 3 simple things.. 1. A sick note to cover me for my time off from work this week. 2. Higher dose evorel/hormone patch to help me cope with the rise in side effects from the new medication. 3. More...

At the moment I’m sitting at home after having to ring in sick to work, again , having cramps, vaginal pain, feeling sorry for myself. Its my birthday next Sunday.. I’ll be 24. When I had my laparoscopy in February I really thought by the time my birthday came I’d be recovered. Finished with endo. Done. Instead, I’ll be a 24 year old that still has an extremely swollen stomach. Still looking five months pregnant and living in my oversized black cardigan just to try and hide the bloated look a little. I don’t think it works, I most probably still look fat or pregnant to others, but its become a kind of comfort and I hardly go anywhere without it on. Since all this started, my swollen stomach was the first main symptom (along with shooting/stabbing pains) that I had and knew instantly something was wrong. Since then, my stomach has never gone down to what it was before. Granted some days its not as bad, but its never flat or ‘normal’. I’ve forgotten what normal looks or feels like. I’m...

Today its June 13 th . I had my lap February 15 th . Four months on, am I cured? No (wishful thinking).. Have I found all the answers I’m looking for? No not yet.. Am I better? Slightly. But nowhere near as much as I hoped. I now see I was a little naïve to think the I’d have the lap and hey presto! Im back to me again! So where am I now? Well to date, I have had four prostap injections. On the last check up at the hospital we realised that it hasn’t been working for me as it should have. For any that do not know, prostap is similar to Lupron - which is supposed to shut down your ovaries and stop your periods. I however continued to have periods while on prostap and for much much longer than normal. Last month I was on for three weeks of the month! They have decided to try me on a new medication called Norethisterone (I have no idea how to pronounce that?!) a hormonal tablet to be taken three times a day. Its been a week and I have had no spotting, no bleeding. Yay! On the oth...