My Endo Diary

I know I won't be alone in these thoughts on this subject.. Endometriosis and a new relationship..  What do you tell them? How much do you tell them? When do you bring it up?  A million questions have been overloading my mind lately as I start a new chapter in my life. The last few weeks have been a bit of a whirlwind for me. A good one! But, fast moving, exciting and terrifying all at once. The scariest part of it all is how endometriosis will impact everything. Right now, it is behaving. But we all know how quickly that changes. I don't want my life revolving around Endo. It has taken over way too much of it already! Now, I have started enjoying my life again, I'm terrified it will be snatched away to pain once again. I have shared The Spoon Theory with my new boyfriend, who was extremely understanding about it. Which actually made me feel so much at ease. I have explained a few of the symptoms. He knows I get 'bad days' and that i'll need rest ...

How do you go from feeling like for the first time (in a long time) you're actually living your life and having a great day with friends and family, enjoying life and generally having fun... to less than a week later (or even a day!) being curled back up in bed crying with the pain, praying the stronger meds will kick in? At one moment you get hope, clarity and life, with a big sense of normality. The next minute, you're faced with pain, upset and darkness, with no sense of it ever being normal again. Why does life with endometriosis have to go from one extreme to the other?  I've been thinking of how we react and cope during such low times. The lows can definitely become more prominent than the highs. Or is it because when in those situations, we focus all our attention on the rare high days? Which makes us feel more lost than usual and back at square one when they are quickly snatched away.  How do you mentally find a balance when there is no way of controlling w...