My Endo Diary

I am really struggling. Endometriosis seems to be taking a hold over my life and I seem to be giving it much more control than I would like. But I'm struggling to do anything different. I'm totally fed up of fighting the pain, taking medication and more than anything, I'm fed up of waiting for better days. For nearly three weeks straight, I've had continuous heavy bleeding with clots. I'm used to this and have experienced it before, but never to the level and heaviness it has been recently. It has really worried me and I've felt quite scared at times. I went to my doctors who prescribed Mefenamic Acid and Tranexamic Acid to help reduce the flow and pain. Along with more Tramadol. My doctor explained that when we have clots with our bleeding, our cervix goes into contractions in order to pass the clots. Which in turn, causes us even more pain. I felt quite optimistic leaving the appointment, especially after talking to a GP that actually had knowledge on En...

Daily Challenge 2: Shower/Bath A daily challenge when I have pain from Endometriosis burning up inside of me, is managing to get in and out of the shower/bath. Does anyone else need to sit down and have a rest once they come out of the shower?! Please say it's not just me! It can be exhausting! What some people take for granted can cause me so much pain! The energy it can take to carry out this simple task when you have Endo is unbelievable. The challenges I face can include: Firstly, finding the energy/strength to go in! Standing up in the shower, trying to wash your hair when you're in pain is no easy task! If having a bath, (yes I know I get to lie down in between) but the energy it takes me to get in and don't mention getting back out of the bath is unreal. A few times I've panicked thinking I'm going to be stuck in there Either from pain and I've found myself not being able to move, or literally zero energy!  Let me assure you, it wouldn't be...

Having Endometriosis can impact all area's of your life. I find it presents me with daily challenges. So, I'm going to share with you some of these challenges in the *hope* that I'm not alone! Hopefully it may also help those without a chronic illness to understand how such simple daily tasks can zap ALL of our energy or cause so much pain! Daily Challenge 1: The Stairs Having a bad day with Endometriosis and climbing the stairs. Mine don't seem to mix.. The staircase in my house only has 13 little steps. 13 footsteps to get from A to B. From downstairs to upstairs. Some people can run up them. Others can take them two steps at a time. For me, every step is a challenge... You know you have Endometriosis when you just about make it to the top of the stairs, (having to stop two or three times during the process!!) to crawl to your bedroom and collapse on your bed. Then, needing to take two Tramadols whilst stuck lying on the bed waiting for the enormous surge of ...

Thursday 13th March.  The day of the Endomarch 2014.  Put it in your diary, it's a date to remember! This is the date when Endometriosis Awareness will be shouted from the rooftops. It will take place in many country capitals, including; Athens Berlin Dubai Johannesburg London Mexico City Rome Stockholm Washington D.C ......... AND MANY, MANY MORE!  This is an internationally coordinated campaign where Endometriosis sufferers, their friends, families and doctors, will all come together to raise awareness. Hopefully the impact of this will make people stop and listen. People will hear our pleas for more awareness and our hear voices when we explain our struggles. Sound's great right? I will hopefully be attending the Endomarch in London. Around 176 million women worldwide suffer from Endometriosis. A chronic illness that to many people is invisible. But to those who suffer from it, it can turn their lives upside down. Much more awarenes...

"People like us, we've gotta stick together..."  Endometriosis binds us all together. So who better to talk to when we feel like we're sinking into a world full of pain and despair? The answer... Endosisters! There is nothing better than talking to someone who knows exactly how you are feeling, understands what type of pains you are having, or has experienced the next treatment you have to 'try'. Having people who understand that daily life with Endo, can sometimes, get a little too much, is a massive benefit. Endosisters know that you may be overcome with emotions one day and struggling to get through the pain, but ready to fight the world the next day! But they will always be there. Good times and bad. Helping each other through. That's why we stick together. The words to this song I think are so fitting & gave me a massive boost when I first heard it! Lyrics "We come into this world unknown But know that we are not alone The...

Here you will find the 'Top 10' posts from my blog during 2013.  I hope you enjoy these posts and more than anything else, I hope you will be able to relate to them! Thanks for reading my blog! MY TOP 10 POSTS OF 2013 The Day In A Life Of An Endo Girl 16/04/13  http:// bit.ly/18vldq2 The Endometriosis Effect  http:// bit.ly/19TN3dL The Emotional Causes Of Endometriosis: My View  http:// bit.ly/179xNvr Endometriosis: My Letter To You  http:// bit.ly/17jccQN Endo Doesn't Come Alone  http:// bit.ly/1aws9kT Endometriosis: A Letter To My Younger Self  http:// bit.ly/14XRJzW Endometriosis & The Spoon Theory  bit.ly/169OTst Endometriosis: My Depression Diagnosis  bit.ly/14CFR6n The Definition Of Endosisters  http:// bit.ly/1by4wYW Endometriosis: Don't Judge Us!  bit.ly/1bdpMIY #MyEndoDiary

My endometriosis battle continues. The part that I seem to be most at war with is the 'swollen stomach'. It was June 2011 when I first posted about the swelling, ( click here  to view) so right now, I feel defeated. When it swells, it literally blows up and at that moment there is nothing I can do about it. People would actually think I'm pregnant. I used to have my 'favourite black cardigan' that I'd wear as a comfort to hide the swelling. Even that won't hide it these days. It's so depressing. It's embarrassing. Along with the ballooning size, also comes pain and the feeling of being so uncomfortable to the point where even breathing hurts. You can't sit, stand or lay down without feeling awkward.  Everything is a struggle. Here's a picture of my stomach when it started to swell...and this is not the worst it gets. It gets bigger. Much bigger. Much to my disappointment and resistance. But I have no control over it and that's what ...